Reidsville, NC - We want to update you on a story we've been staying on top of since December. We talked to Jaxx (Baby Jaxx) Denny's family Saturday night.
They're heading to Philadelphia early Sunday morning. They told WFMY News 2 Jaxx is doing well, and they expect his spinal cord surgery to happen on Tuesday.
The family is asking everyone to keep Jaxx and his family in their prayers.
December 29 2011, Background story: Seven-month-old Jaxx Denny was born with a rare condition and faces a lifetime of surgery.
Jaxx was born without six ribs on his right side and without his right kidney. He also has a severely curved spine.
Doctors diagnosed Jaxx Thoracic Insufficiency Syndrome and scholiosis.
"They did a chest x-ray, and when he showed us the film, our jaws just dropped because his spine is so curved. It just looks like an S almost.," said Jaxx's mother, Tammy Denny.
The Dennys have been traveling back and forth to Children's Hospital of Philadelphia, where Jaxx will have surgery on January 24, 2012.
Doctors will re-build Jaxx's rib cage and insert two titanium rods into his back. The surgery is called Vertical Expandable Prosthetic Titanium Rib, or VEPTR.
Every four to six months, Jaxx will have another surgery to expand the rods as he grows. Eventually, he'll grow out of those rods and he'll have to have surgery to replace them with adult-size rods.
After the surgery, doctors said Jaxx will be able to crawl and eventually, walk.
"I already know Jaxx is going to be fine. He's going to be great. It won't be too much longer he's going to be out in the yard playing T-ball with me, Eli and Leah. I know that," said Jaxx's father, Pete Denny. "That's going to be priceless."
Pete and Tammy Denny have created a Facebook page for their son. You can click on this link:
You can find more information about Jaxx's surgery here:
If you'd like to help Jaxx and the Denny Family, please contact Home Savings Bank in Reidsville or Eden, where an account has been set up in Jaxx's name.
WFMY News 2